Today was a big day for us... The first step to starting Callum on his 'treatment' for EoE, was to identify one thing that he wasn't allergic to, so that he could live on a formula plus that one food for 3-4 weeks.
So we spent the past week mostly in seclusion while preparing for the test, since he had to be off his anti-histamines for seven days before he could be tested. We explained to him that he couldn't go out, he couldn't do this, he couldn't do that, ... until today. He's been good and very understanding about it.
This morning, we all trudged out to NYC... lots of prep work at the Dr's office, and then finally we did Callum's first set of skin-prick tests. We tested twelve items (plus two controls). He was positive to ten of the twelve. Only things he didn't react to was rice and dill-weed. This is a good sign. Now we get to try a rice+formula diet on him, to see if there is any improvement to the EoE/EoG.
Next step is to see the dietician to ensure that when we are on this new diet, he doesn't become malnourished. I suspect she will be telling us how much formula he needs each day. There may be other products that we may be able to use (from Neocate) that may act as supplements.
The sad part was that he came back positive for Beef, Potato, Corn and most other things we tried. He also has a really bad reaction to Coriander, and a moderate one to Turmeric (who'd have thought that!) as well as Cumin. This really sux because he loves 'fried beef' (almost indian style, with some salt+pepper+cumin)... one of his favorite foods.
Anyway... more to come in this saga...
So we spent the past week mostly in seclusion while preparing for the test, since he had to be off his anti-histamines for seven days before he could be tested. We explained to him that he couldn't go out, he couldn't do this, he couldn't do that, ... until today. He's been good and very understanding about it.
This morning, we all trudged out to NYC... lots of prep work at the Dr's office, and then finally we did Callum's first set of skin-prick tests. We tested twelve items (plus two controls). He was positive to ten of the twelve. Only things he didn't react to was rice and dill-weed. This is a good sign. Now we get to try a rice+formula diet on him, to see if there is any improvement to the EoE/EoG.
Next step is to see the dietician to ensure that when we are on this new diet, he doesn't become malnourished. I suspect she will be telling us how much formula he needs each day. There may be other products that we may be able to use (from Neocate) that may act as supplements.
The sad part was that he came back positive for Beef, Potato, Corn and most other things we tried. He also has a really bad reaction to Coriander, and a moderate one to Turmeric (who'd have thought that!) as well as Cumin. This really sux because he loves 'fried beef' (almost indian style, with some salt+pepper+cumin)... one of his favorite foods.
Anyway... more to come in this saga...
1 comment:
This isn't a one-step process and Beena and you have shown how far and how long you are willing to go to make sure he gets better.
I still wish there was a magic trick I could help you discover for his allergies!
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